Experiences of family carers – recruitment

Researchers at the Tizard Centre and PSSRU, University of Kent are conducting a study about the experiences of family carers who manage personal budgets for people with intellectual disabilities and/or autism who have moderate to high levels of support need.

The researchers would like to speak one-to-one with family carers to understand more about your experiences of managing personal budgets, such as what information and support is available to you.

The interview takes about 30-45 minutes and can be face-to-face or by telephone.  As a thank you, you will receive a £20 Amazon voucher for taking part.

If you would be interested in taking part in this please contact Agnes Turnpenny (a.v.turnpenny@kent.ac.uk) or Beckie Whelton (R.Whelton@kent.ac.uk)

For more information please see our poster

We very much look forward to hearing from you.

 

 

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Disability History Month December 2018

As Disability History Month 2018 draws to a close some inspiring student profiles curated by Kent Union were shared online.  The project entitled “Don’s Dis My Ability” was thought up and run by Omolade Adedapo and Kimberley Ubendran.

These included one by Krysia Waldock, PhD Student at the Tizard Centre.

“I’m an autistic PhD researcher at the Tizard Centre exploring attitudes towards autism in different faith communities and faith spaces. I’m a rotational panellist on BBC Radio Kent on the Sunday Breakfast show, talking about news from a faith perspective (which I really enjoy and hence the photograph), write my own blog (http://krysiawally.blogspot.com) and a proofreader for the GradPost.

Apart from my keen interest in media and all things writing, I love animals and spend far too long watching YouTube. My first degree was in German and French, so have enjoyed much travelling before my PhD.

Disability History Month is important to me to as it gives a voice and agency to disabled and neurodiverse students, letting us write our own narrative. This does not happen enough, and if it does, it’s usually tokenistic. The university can do so much more for disabled and neurodivergent students. It’s about time conversations started happening with us there.”

The other student profiles can be viewed using this link

 

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Keep Safe Training

Participants and trainers (Ro Rossiter, Tizard Centre, Stephen Barry and Victoria Jones, Be Safe Service Bristol) at the recent Keep Safe training in London. Keep Safe, an intervention for males aged 12-25 with learning disabilities who have displayed problematic or harmful sexual behaviours, was developed and feasibility trialled through a Tizard based project.

Thanks to Claire Bates and Choice Support for welcoming us. Amazingly, one of their receptionists – also in photo – was one of the characters in the well-known, and still used, sex and relationships video “My Choice, My Own Choice”.

There are a few places left on the next  Keep Safe training 22/23 November 2018 in Glasgow organised by NOTA Scotland- see https://www.cycj.org.uk/event/nota-scotland-keep-safe-intervention-for-young-people-with-learning-disabilities-who-display-harmful-sexual-behaviours-and-their-parents-carers/

For more information on Keep Safe see https://www.kent.ac.uk/tizard/sotsec/ySOTSEC/ySOTSEC.html
Malovic, Aida and Rossiter, Rowena and Murphy, Glynis H. (2018) Keep Safe: the development of a manualised group CBT intervention for adolescents with ID who display harmful sexual behaviours. Journal of Intellectual Disabilities and Offending Behaviour, 9 (1). pp. 49-58. ISSN 2050-8824. (doi:https://doi.org/10.1108/JIDOB-10-2017-0023) at  https://kar.kent.ac.uk/67387/

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SOTSEC-ID Training

This week Prof Murphy, Prof Langdon and Dr Neil Sinclair ran two days of SOTSEC-ID training for psychologists in Dublin. The psychologists came from all over Ireland and are wanting to provide SOTSEC-ID treatment for men with intellectual disabilities and harmful sexual behaviour. Dr Emily Blake and Dr Magali Barnoux were also there, receiving training and providing admin support.

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MindEd LDMH Modules now live

A number of academics and professionals have been working on a  free online training resource for anyone about people with intellectual disabilities and challenging behaviour, autism, and those with mental health problems with funding from HEE.  The CBF have been working alongside experts in this area to develop these training modules.  They are now live, with an official launch date to be announced.

If anyone wants to access them, they just need to set up an account.   This is free to anyone.

 

 

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Experiences of family carers – recruitment for study

Researchers at the Tizard Centre and PSSRU, University of Kent are conducting a study about the experiences of family carers who manage personal budgets for people with intellectual disabilities and/or autism who have moderate to high levels of support need.

The researchers would like to speak one-to-one with family carers to understand more about your experiences of managing personal budgets, such as what information and support is available to you.

If you would be interested in taking part in this please contact Agnes Turnpenny or Beckie Whelton.

For more information please see our poster: Recruitment advertisement_KentSurreyEssex

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Forced Marriage “My marriage, my choice”

On Monday 15th October, Dr Michelle McCarthy from the Tizard Centre will join colleagues from University of Nottingham at the House of Commons to discuss the findings of their Forced Marriage  research project and show My Marriage My Choice , the film they have made with, and for, people with learning disabilities and their families.

Michelle will also be giving a seminar on this topic on Wednesday 24 October at the University of Kent, Canterbury campus, 17:00-18:00 hrs.  If you wish to attend please email J.Ruffels@kent.ac.uk

The lecture is free and open to everyone.

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Positive Behaviour Support Lead (job opportunity)

United Response have an exciting job opportunity for a Positive Behaviour Support Lead. Working across North England, the successful candidate will shape and maintain PBS practice across our services. United Response are committed to making PBS accessible to everyone and increasing team competence. The PBS lead will undertake functional assessments, and interpret these in a way that is meaningful to the person and their circle of support. Candidates will hold a qualification relevant to PBS and will have extensive experience of supporting individuals with learning disabilities and/or autism who may present behaviour that challenges.

 

Please check out the link for the full job description and details on how to apply. For further information, please email marie.cresswell@unitedresponse.org.uk

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SOTSEC-ID Training

In September 2018, Prof Murphy (Tizard Centre), Dr Neil Sinclair and Dr Rowena Rossiter  welcomed 10 visitors from Japan, including Mayumi Howie (Prof of Psychology), Takeshi Hirai (Professor of Education), Yoko Ise (psychiatrist), Yoshiko Hashimoto (lawyer), and 4 social workers (from Nagoya child guidance centre). The group had come for further training in SOTSEC-ID and Keep Safe, as they have started running such CBT groups in Japan in the relative absence of other treatment initiatives for people with intellectual disabilities and/or autism who have harmful sexual behaviour. The group came with Masako Suzuki, who acted as Translator. Masako is also chair of the Itabashi Parents association for persons with developmental disorders.

After 3 days with Prof Murphy, Dr Rossiter & Dr Sinclair, the group also visited the Prison Reform Trust (to meet with Jenny Talbot) and met with Respond. Finally on Friday, Prof Murphy accompanied them to Oxleas NHS Trust to meet with facilitators of SOTSEC-ID groups and some experts by experience.

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Seattle Club Conference 2018

This year’s Seattle Club Conference is being held at the Shrewsbury Centre of the University of Chester, on 3 – 4 December 2018.

The Conference is open to any researcher based in the UK or Ireland, who has new data relevant to the study of intellectual and developmental disabilities.

More details will be available shortly with regards to registration/applications.  http://seattleclubconference.org/

 

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