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Forthcoming This Summer 2015 – Revisiting the Regulation of Human Fertilisation and  Embryology

Kirsty Horsey, University of Kent at Canterbury, UK

Series: Biomedical Law and Ethics Library

horsey

The Human Fertilisation and Embryology Act 2008 was a major update to the UK’s laws on the use of reproductive technology and the regulation of assisted reproduction.

This book critically evaluates the recent developments, asking whether the Act has achieved the stated aim of being ‘fit for purpose’ or, if not, what improvements should be made. The book brings together a range of experts in law and ethics in order to evaluate the fresh risks and challenges emerging from both established and existing technologies and techniques in the field of human fertilisation and embryology, as well as offering valuable insights into the social and regulatory challenges that lie ahead.

TABLE OF CONTENTS:

  1. Revisiting the Regulation of Human Fertilisation and Embryology, Kirsty Horsey
  2. From need “for a father” to need “for supportive parenting”: changing conceptualisations of the welfare of the child following assisted reproductive technology in the United Kingdom, Eric Blyth
  3. The Law and DIY Assisted Conception, Emily Jackson
  4. Prisoners’ Access to Fertility Services, Helen Codd
  5. Thinking outside the (egg) box: Egg-share agreements, cord blood and ‘benefits-in-kind’, Karen Devine
  6. PGD Past, Present and Future: Is the HFE Act ‘Fit for Purpose’? Jeanne Snelling and Colin Gavaghan
  7. The ‘Two-mother’ Misnomer: Mitochondrial DNA Transfer Under the HFE Act, Laura Riley
  8. The Fertility Treatment Time Forgot: What Should be Done About Surrogacy in the UK?, Kirsty Horsey and Katia Neofytou
  9. Access to Genetic and Biographical History in Donor Conception: An Analysis of Recent Trends and Future Possibilities, Eric Blyth and Lucy Frith
  10. Compensating reproductive harms in the regulation of 21st century assisted conception, Antony Blackburn-Starza
  11. ‘A less than perfect law’: The unfulfilled promise of Canada’s Assisted Human Reproduction Act, Pamela White
  12. The regulation of PGD for medical sex selection and the gendering of disability in the UK and Australia, Isabel Karpin
  13. New wine in old bottles and old wine in new bottles: The judicial response to international commercial surrogacy in the United Kingdom and Australia, Anita Stuhmcke

Hb: 978-1-138-02189-1 | £85.00

For more information visit: http://bit.ly/1DZ7rgI

routledge

For more details, or to request a copy for review, please contact: Kizzy Lam, Marketing Assistant, by emailing kizzy.lam@tandf.co.uk

 

Science, Law and Bioethics: CISoR’s successful second event in February

Drawing on the growing links with the University of Ghent, CISoR held a multidisciplinary symposium with staff, students and visitors in attendance. We were proud to welcome our distinguished guests Dr Veerle Provost and Professor Guido Pennings from the Bioethics Institute Ghent (BIG).

On Tuesday 24th February CISoR, KCLGS and CeCIL co-hosted a showing, then open discussion, of the film “VESSEL.” VESSEL is the story of a young doctor who had an unlikely idea. Rebecca Gomperts, horrified by the realities created by anti-abortion law around the world, felt compelled to challenge this. Her method was to provide abortions on a ship in offshore waters. The audience witnessed the creation of an underground network of emboldened, informed activists, working at the cutting edge of global reproductive rights, who trust women to handle abortion themselves. Rebecca’s story is one of a woman who heard and answered a calling, and transformed a wildly improbable idea into a global movement. The audience, inspired by the film, held a lively debate about its implications afterwards.

Vessel

On Wednesday 25th February, led by Dr Pamela White (KLS), a series of academics spoke about their work and prospects for future collaborative projects. Dr Ellie Lee (SSPSSR) started proceedings with her paper ‘After the “need for…a father”: “The welfare of the child” and “supportive parenting” in UK assisted conception clinics’. The first of our honoured guests Professor Guido Pennings spoke about ‘The welfare of the child after social freezing of oocytes’ and Deputy Director of CISoR Professor Sally Sheldon gave a presentation on ‘The regulatory cliff edge between contraception and abortion: The legal and moral significance of implantation.’

Following a break, the second of our guests Dr Veerle Provoost asked the audience to consider ‘What constitutes parenthood according to (aspiring) parents, knowing that one partner will not be/is not genetically related to their child?’ Professor Robbie Sutton (Psychology) spoke of ‘The precious vessel hypothesis: ubiquity and implications of “benevolent sexism” for interventions on conception, pregnancy and childbirth’ while Dr Pamela White (KLS) told us of ‘Hidden data/hidden activities: What Canada’s ART Registry (CARTR) reveals about gestational carriers’. The day concluded with CISoR director Professor Darren Griffin (Biosciences) sharing his insights into ‘25 years of Preimplantation Genetic Diagnosis’, an area of medicine in which he has been involved since its inception. The throng enjoyed a drinks reception in Keynes College and a meal at Deeson’s.

Group photo

From left to right members of CISoR (Kent) and the Bioethics Institute (Ghent). Professor Darren Griffin (Kent), Dr Veerle Proovost (Ghent), Professor Sally Sheldon (Kent), Professor Guido Pennings (Ghent) and Dr Pamela White.

On the morning of Thursday 26th February Dr Kirsty Horsey hosted a Book Panel entitled “Revisiting the Regulation of Human Fertilisation and Embryology” with Dr Antony Blackburn-Starza, Dr Katia Neofytou, Dr Karen Devine and Dr Pamela White. The afternoon was given over to a round table discussion of possible collaborative opportunities for KLS, BIG and CISoR. Topics of discussion included.
• Student research/research areas of interest
• Research funding opportunities, joint ventures
• Student/teaching joint collaborations
• Further Kent/Ghent collaborative visits in 2015
• Topics for further Kent/Ghent collaborative visits in 2015, such as death and dying, genetic testing/screening, donation of tissues and organs, parenting
The discussion was enriched by participation from LLM and PhD students studying Medical Law and Ethics (KLS) and MSc students in the Reproductive Medicine: Science and Ethics (Biosciences) program.

CISoR, KLS and BIG are grateful to all participants particularly Dr. Pamela White for her organizational skills, Professors Robin Mackenzie, Ellie Lee and Kirsty Horsey for chairing the sessions and post-graduate students Becky O’Connor, Katia Neofytou and Tory Hibbit for their student outreach activities and organization participation.

round table

Round table discussion

Link

In October, the English Government’s Social Mobility and Child Poverty Commission published a report that proposed a national programme of parenting classes, claiming that four in ten parents are doing an inadequate job raising their children. These comments responded to the Report:
Reader in Social Policy at the University of Kent Dr. Ellie Lee comments: ‘Hey, teacher, leave those parents alone!’

http://www.spiked-online.com/newsite/article/hey-teacher-leave-those-parents-alone/16056

 

Breastfeed for longer and save the NHS £40m

In December, Ellie Lee gave comment to The Times about a paper on the financial benefits of breastfeeding: ‘‘Ellie Lee, an expert in parenting culture at the University of Kent, said: “It is more and more apparent that women’s bodies have come to be thought of as a means to achieve the end of cost-cutting. Both home birth and breastfeeding are now discussed this way, as practices that can ‘save the NHS money’. This is wrong — women need to be seen as individuals and the starting point should always be their right to make the choices they see as best when it comes to pregnancy, birth and raising their child.” ‘

Biologising Parenting: Neuroscience Discourse and English Social and Public Health Policy

The article referred to in the piece by Zoe Williams reported on an event held in March this year, as part of the ‘Uses and Abuses of Biology’ research project. You can read more about this project, and access articles and papers from it and March event, here: 

Nappies could contain messages to get parents talking to babies

November saw criticism of a proposal from the Behavioural Insights Team (the ‘Nudge’ Unit) for messages to be put in nappies about taking to babies. Reader in Social Policy at the University of Kent, Dr Ellie Lee commented in this article in the Independent:

‘Hey, teacher, leave those parents alone!’

In October, the English Government’s Social Mobility and Child Poverty Commission published a report that proposed a national programme of parenting classes, claiming that four in ten parents are doing an inadequate job raising their children. These comments responded to the Report:
Reader in Social Policy at the University of Kent Dr. Ellie Lee comments: ‘Hey, teacher, leave those parents alone!’

Kent | Ghent Bioethics Collaborative Initiative Event Agenda

Kent | Ghent Bioethics Collaborative Initiative  24-26 February 2015        

Kent Law School | Bioethics Institute Ghent | Centre for Interdisciplinary Studies of Reproduction (CISoR) University of Kent

Tuesday 24.02.15

VESSEL: Film Viewing and Discussion
Eliot Lecture Theatre ELT2 18.00 – 20.00

Co-hosts: CISoR, KCLGS & CeCIL
Moderator: Sally Sheldon

VESSEL begins with a young doctor who lived by the sea, and an unlikely idea. Rebecca Gomperts, horrified by the realities created by anti-abortion law around the world, felt compelled to challenge this. Her method: to provide abortions on a ship in offshore waters.

We witness the creation of an underground network of emboldened, informed activists, working at the cutting edge of global reproductive rights, who trust women to handle abortion themselves. VESSEL is Rebecca’s story: one of a woman who heard and answered a calling, and transformed a wildly improbable idea into a global movement.

Wednesday 25.02.15                                                                                                               

Confronting Science, Law & Bioethics: Areas of Current Research I

Keynes KLT5

13.30 Pamela White Introduction: Kent|Ghent
13.40 Ellie Lee ‘After the “need for…a father”: “The welfare of the child” and “supportive parenting” in UK assisted conception clinics’
14.10 Guido Pennings ‘The welfare of the child after social freezing of oocytes’
14.40 Sally Sheldon ‘The regulatory cliff edge between contraception and abortion: The legal and moral significance of implantation’
15.10 Health Break
15.40 Veerle Provoost ‘What constitutes parenthood according to (aspiring) parents, knowing that one partner will not be/is not genetically related to their child?’
16.10 Robbie Sutton ‘The precious vessel hypothesis: ubiquity & implications of “benevolent sexism” for interventions on conception, pregnancy and childbirth’
16.40 Pamela White ‘Hidden data/hidden activities: What Canada’s ART Registry (CARTR) reveals about gestational carriers’
17.10 Darren Griffin ‘25 years of PGD’
17:40 CISoR Light Refreshments
18:30 Close

 

Thursday 26.02.15                                                                                                                  

Confronting Science, Law and Bioethics: Areas of Current Research II       

Keynes KLT5 

10.30 Book Panel Kirsty Horsey: Revisiting the Regulation of Human Fertilisation and EmbryologyKirsty Horsey, Antony Blackburn-Starza, Katia Neofytou, Karen Devine, Pamela White

Working Lunch

Brian Simpson Room KLS Eliot Extension

12.00 Robin Mackenzie, Veerle Provoost, PG/LLM student representativesCollaborative opportunities for KLS | Ghent |CISoR

·       Student Research/Research areas of interest

·       Research funding opportunities, joint ventures

·       Student/teaching joint collaborations

·       Planning for Kent/Ghent visit in April, 2015

·       Focus on Death and Dying, Genetic Testing…

·       Summary and Conclusion

14:00 Close

 

 

New research suggests that chickens experienced fewer gross genomic changes than other birds as they evolved from their dinosaur ancestor

CISoR director Professor Darren Griffin appeared on BBC radio 4 Today programme (as well as the BBC World Service), talking about his work on avian genomes and how change in them can lead to reproductive isolation. In the most recent work, Professor Griffin described his laboratory’s research on chromosomal change and how, of the genomes they have analysed, the chicken and turkey most closely resembles the dinosaur ancestor of birds.

Published in the journal BMC genomics the paper was led by Michael Romanov in collaboration with Drs Denis Larkin and Marta Farre of the Royal Veterinary College

Dino

The Kent research is part of a study by a consortium of leading scientists into avian or bird genomes, which tell a story of species evolution published in the December issue of the popular journal Science. The living descendants of dinosaurs were thought to have undergone a rapid burst of evolution after most dinosaur species were wiped out. The detailed family tree of modern birds has however confused biologists for centuries and the molecular details of how birds arrived at the spectacular biodiversity of more than 10,000 species is barely known.

Professor Griffin explained that bird genomes are distinctive in that they have more tiny microchromosomes than any other vertebrate group. These small packages of gene-rich material are thought to have been present in their dinosaur ancestors. The team found that the chicken has the most similar overall chromosome pattern to its avian dinosaur ancestor. The researchers also found that the fastest rate of change had occurred in the zebra finch and budgerigar, consistent with more rapid speciation events in songbirds and their relatives.

Professor Griffin pointed out, to around 5 million listeners, that features such as birdsong evolved largely as reproductive strategies to find a mate.

FISH Image

DNA hybridization experiment under a fluorescence microscope showing the relationship between a section of ostrich and chicken genomes.