New adapted treatment programme for offenders

In the first week of December, Prof Murphy spent 4 days training psychology staff in Wakefield and Wynott prisons, alongside FPLD staff, to deliver a new adapted treatment programme for offenders with learning disabilities.  This work is led by Alison Giraud Saunders from the Foundation for People with Learning Disabilities.  Prof Murphy is acting as the clinical psychology consultant for adaptions to the Thinking Skills programme, a cognitive behavioural programme that helps offenders gain self-control, problem-solving and relationship skills.  Up until now the programme had not been available for people with learning difficulties but the Ministry of Justice is keen to put this right, hence the new adapted programme that is being piloted in prisons.

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Seattle Club Conference 2012

Six members of the Tizard team travelled to the Seattle Club Conference, for young researchers in learning disabilities, in Kendal in December, with Prof Glynis Murphy giving the key note speech “Intellectual Disabilities and the Criminal Justice System: Recent Research and Remaining Questions”. 

Paraskevi Triantafyllopoulou, Research Assistant,  presented  her recent research “Carers’ views of sleep disorders in adults with intellectual disabilities”.  The prevalence of sleep problems in people with intellectual disabilities (ID) is much higher than in the general population.  Most of the studies investigating sleep in ID tend to focus on children rather than adults.  The aim of the current study is to identify the most common sleep problems that carers believe adults with ID tend to experience; to investigate whether a degree of ID affects sleep problems and finally to look at whether the carers’ views of the individuals’ challenging behaviours correlate with sleep problems.

 Dr Jill Bradshaw, newly appointed Lecturer, gave a  poster presentation “Staff attributions of challenging behaviour and perceptions of communication in adults with intellectual disabilities and challenging behaviour”.   Communication partners have a major role in making interpretations of communicative acts.  This research was designed to provide opportunities for these partners (staff supporting service users) to discuss their views, experiences and interpretations of communication and challenging behaviour in order to explore the role these play in their interactions and responses.

Likewise Aida Malovic, Research Assistant at the Tizard  also gave a poster presentation.   Aida’s poster is based on “The people with Asperger Sydrome and anxiety disorders (PAsSA) trial”.  There is a body of literature demonstrating that children, adolescents and adults with Asperger Syndrome and high functioning autism have significant problems with anxiety.  These problems may significantly impair their quality of life. There is evidence to suggest that cognitive behaviour therapy is an effective treatment for anxiety.  The study is looking to determine whether or not psychological treatments for anxiety can be adapted and used to successfully treat the anxiety experienced by people with Asperger syndrome. 

http://www.kent.ac.uk/tizard/research/Current_recent_research.html

http://www.seattleclub.org.uk/

 

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Hottest Classroom on Earth

Trystan Williams, Principal at Springfield Academy, recently took 10 pupils with behavioural problems including ADHD and Autism on a 100 mile trek through Tanzania – his goal to prove that against all odds the most vulnerable children can truely succeed.  The teenagers were selected from over 200 special schools in England and Wales. 

http://www.bbc.co.uk/iplayer/episode/b01pd177/The_Hottest_Classroom_on_Earth/

 

 

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Winterbourne View Hospital – final report

The government has  published its final report into the events at Winterbourne View Hospital and has set out a programme of action to transform services so that vulnerable people no longer live inappropriately in hospitals and are cared for in line with best practice.

The programme is backed by a concordat signed by more than 50 partners, setting out what changes they will deliver and by when. The government will publish a progress report on these actions by December 2013.

The final report into the events at Winterbourne View Hospital states that staff routinely mistreated and abused patients, and management allowed a culture of abuse to flourish. The warning signs were not picked up, and concerns raised by a whistleblower went unheeded.

The report also reveals weaknesses in the system’s ability to hold the leaders of care organisations to account. In addition, it finds that many people are in hospital who don’t need to be. People with learning disabilities or autism, who also have mental health conditions or challenging behaviour can be, and have a right to be, given the support and care they need in the community, near to family and friends.

Read the final report: http://www.dh.gov.uk/health/2012/12/final-winterbourne/

 

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Research Seminar – “Black and minority ethnic men’s constructions of emotional wellbeing”

Dr Frank Keating, Senior Lecturer at the Royal Holloway University, London, will be giving the third in our series of Seminars.   “Black and minority ethnic (BME) men’s constructions of emotional wellbeing”.  This is being held on the 28th November 2012 at the Kent Business School, Lecture Theatre at 1700-1800hrs.

The mental health needs of BME men is an area for public concern.  These groups are disproportionately represented in mental health statistics.  Common concerns include the high rates of schizophrenia and psychotic disorders and the fact that these men normally find themselves at the harsher end of mental health services.  This presentation will report the findings from a qualitative study to explore BME men’s perceptions and constructions of emotional well-being.  It will conclude that a complex mix of gendered and racial experiences, coercive power of institutions and men’s own perceptions of services and vice versa contribute to how BME men construe emotional well-being. 

To book a place please email J.Ruffels@kent.ac.uk

Related news:  http://www.bbc.co.uk/news/health-20300506

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Domestic violence and women with learning difficulties project

Dr Michelle McCarthy, Senior Lecturer at the Tizard Centre, has been granted funding by the School for Social Care Research (part of the National Institute for Health Research) for a 2 year research project on Domestic Violence and Women with Learning Disabilities.  Dr McCarthy is being assisted by two researchers, Siobhan Hunt and Karen Milne-Skillman, on the project which commenced at the beginning of September 2012.

The overall aim is to learn more about the experiences of domestic violence by women with learning disabilities in the Kent and Southeast London area and to identify ways of improving the support available to them.  The research will consist of in-depth, one-to-one interviews with women who have experienced domestic violence and a national survey of frontline professionals and organisations who provide information and support services in relation to domestic violence, such as the Police, Social Services and Refuges. 

A Steering Group has been set up comprising of various organisations and professionals involved in domestic violence services.  Focus groups of women with learning disabilities have also been set up to explore the issue of domestic violence.  The information gathered from the Focus Group will help to inform the design of interview schedules and the nationwide survey of professionals. 

Feedback will be given to individual women who take part using accessible written and pictorial materials.  The information will also be made available via booklets printed in plain English, a DVD and will also be on the Tizard website and will include advice on how to avoid and escape violent relationships.  There will also be targeted briefing papers for key professionals, Police, Social Care Practitioners and women’s refuge staff, so as to influence best practice, as well as briefings for local and national policy makers and academic dissemination through publications and presentations.

We would really like to hear from:

  • any organisations in Kent and South-East London that have had contact with women with learning disabilities who have recently experienced domestic violence and who may be able to pass on information about the research project to these women.
  • Any individuals or domestic violence support organisations anywhere in the UK who might like to share experiences or discuss the project in any way.

Please contact us on 01227 823116 or email TizardDomesticViolence@kent.ac.uk

 

 

 

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Autism Spectrum Disorder Database

Staff at the University of Kent’s Tizard Centre and School of Psychology have come together in the hope of developing an official database of willing participants with Autism Spectrum Disorder (ASD) in the local area.  The need for this platform has emerged with the growing amount of research on this topic that is being conducted across the University and with increasing numbers of individuals expressing an interest in taking part in our research.

The database would be set up in the form of a website that would offer a choice to individuals to register their interest (as participants as well as for information) and will allow academics to advertise their current research.  Ultimately this should make research on this topic easier and enhance our growing interdisciplinary links.  We are currently looking to hear from anyone that might be interested in contributing to and using this database.  

If you would like to be involved please contact Aida Malovic (A.Malovic@kent.ac.uk)

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IASSID 2012 Halifax

In July 2012, a number of the Tizard team travelled out to attend the World Congress of the International Association for the Scientific Study of Intellectual Disabilities (IASSID), held in Halifax, Nova Scotia.  IASSID is the world’s largest international association of researchers in intellectual disabilities and Professor Murphy (Tizard) has been the President of IASSID for the past 4 years.  She has worked with Vianne Timmons and the other members of the IASSID executive to organise this World Congress, attended by about 800 people from all over the world.  The Congress was very successful with over 600 papers being presented from around the World and more than a dozen plenary speakers, one of whom was Dr Michelle McCarthy from the Tizard Centre.  Other Tizard staff and PhD students presenting papers included Dr Rachel Forrester-Jones, Dr Julie Beadle-Brown, Amanda Bates, and Vivi Triantafyllopoulou.  The abstracts for the Congress (over 600 of them) were published in the Journal of Intellectual Disability Research.  At the end of the World Congress, Prof Murphy received a standing ovation from delegates, as she handed over the Presidency to Prof Vianne Timmons of Canada.  The net result was a very thought provoking Congress for researchers in the field of intellectual disabilities.  For more information see:  https://www.iassid.org/

Prof Glynis Murphy at the Conference

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“Everybody Matters” film

We are delighted to announce that following the sad and untimely death of Prof Jim Mansell, a large number of friends, relatives, and colleagues as well as individuals who had never met Jim, donated a significant amount of money, just over £3,700 in total.  It has been agreed by United Response and The Challenging Behaviour Foundation that this will be used towards producing the film “Everybody Matters“; a project dear to Jim’s heart and in which he himself participated.  It is hoped that the final film will raise awareness and demonstrate that individuals with learning disabilities, whose behaviour is described as challenging, can be successfully supported to have good lives within their local community. 

A training resource pack will also be developed and information about the film including a 10 minute trailer is now available.  http://www.challengingbehaviour.org.uk/strategy-group/everybody-matters-film/everybody-matters.html

The film follows on from the abuse highlighted by BBC’s Panorama in 2011, when Jim was quoted as saying:

there’s no doubt that we need to take action to stop these kinds of services being used in this way as dumping grounds as an alternative to developing proper local services for people”   

Jim’s contribution to improving the lives of some of the most marginalised, vulnerable and excluded individuals has been immense.  We would also like to thank all of those who generously gave donations and made the completion of this project possible.

 

 

 

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German Paralympics Team Lecture

During the recent paralympics, Gillian Ziegner, MA Autism Studies (Distance Learning)  gave a lecture to the German Behinderten-Sportverbrand (Association of Sport for the Disabled) and disabled atheletes from Germany “Inclusive Education in England: present reality or utopian dream?”  This outlined the implementation of inclusive policies in schools in England followed by a 40 minute discussion in German centred on the policies in North Rhine-Westphalia where it is intended to close a large number of special schools and to implement inclusive school policies over the next few years. Gillian currently teaches in an inclusive school in North Rhine-Westphalia and so was able to compare the two countries and see where the pitfalls lie. 

Gillian was also lucky enough to attend the paralympic swimming events on the 1st September as the guest of Herr Keuther, Events Secretary of the German Behinderten-Sportverband Nordrhein-Westfalen.

 Abstract-Inclusion 

 

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